I have started something like this before, but I lost all my stuff after moving to a different server and to be honest, I didn’t really give a shit anymore. But now, I’ll just start over again and see where this goes and who I can reach.

This is about certain things going on in my life, ongoing things with my son Tyler and Julien and I would also share some knowledge about NF1 and recent studies as well as clinical trails which may cure this disease for my oldest son and all the other kids and adults.

I would be happy to find parents, doctors, scientists and whoever else to exchange their thoughts!